What if you had a window into the future, not to predict its challenges, but to be better prepared for them? Learning from expert dementia caregivers gives you just that – Tips for managing dementia so you don't have to learn “on the job”.
This guide offers 12 invaluable pieces of wisdom from caregivers who have walked this path, offering you the support and insights they wish they'd had from the very beginning.
Learn From Experienced Caregivers Who Have Dealt with Dementia
Caring for someone with dementia isn’t intuitive and doesn’t come naturally. There’s a lot to learn, but you don’t have to figure everything out the hard way.
In a helpful article at Verywell, social worker Esther Heerema shares 12 dementia care tips that caregivers have learned and wished they’d known sooner.
This advice isn’t meant to add pressure or expectations to your already tough job. They’re tips from caregivers who have “been there and done that” that can lighten your load, reduce stress, and help you cope with the challenges.
Here, we share highlights from Esther’s article along with some of our own insights.
12 Dementia Care Tips From Experienced Caregivers
1. It’s not worth it to argue with someone who has dementia
Alzheimer’s and dementia can cause an older adult’s brain to malfunction. When they say things that don’t make sense or are clearly untrue, they believe what they’re saying because it’s what their brain is telling them.
It’s frustrating to hear things that aren’t true and instinctive to try to correct or remind. But that will only lead to both of you arguing or getting upset. And you simply can’t win an argument with someone who can no longer consistently use reason or logic.
2. Ignoring symptoms won't make them go away
When you notice your older adult struggling with memory, thinking, or judgment, it’s scary to think that they might have dementia. Because it can be so hard to accept, many people hope that the symptoms will go away on their own or that they’re mistaken.
But the situation isn’t going to fix itself.
The best thing to do is have them see their doctor for a thorough exam. First, there are many treatable health conditions that cause dementia-like symptoms. Second, even if dementia has no cure, early diagnosis means treatments will be more effective, potentially delaying progression, reducing symptoms, and improving quality of life.
3. Too many medications can make people feel and act more confused
Medications prescribed to relieve symptoms can sometimes make dementia symptoms worse or create new problems, like increasing disorientation or agitation.
This can happen because seniors are at higher risk for problems related to medication side effects or drug interactions. Dementia can also change how certain medications affect the brain.
To reduce medication-related problems, call the doctor if you suspect a new medication is causing problems and ask them to find alternatives that may work better. It’s also essential to have the doctor regularly review all medications and supplements to ensure each is still needed.
4. Use validation therapy or therapeutic fibs to respond kindly
Dementia care experts recommend joining your older adult in their reality rather than trying to force them back into ours. Trying to get them to understand facts or our reality usually causes confusion, anxiety, fear, and anger.
Someone with dementia may insist that they’re children waiting for their mother to pick them up, they need to get to the office even though they’re retired, or they’re going to visit a relative who passed away long ago. Instead of telling them that they’re wrong, use validation therapy or therapeutic fibs to kindly respond to their version of reality.
Gently ask an open-ended question about the person they’re going to see or the activity they want to do. Or join their reality by saying OK, going along with the scenario for a while, then redirecting to a different activity.
Validating their reality and allowing them to express their thoughts helps them feel calmer and happier.
5. It’s never too late improve brain health
After finding out that your older adult has dementia, it might seem like improving brain health would be useless. But healthy habits can truly help a brain with dementia. It’s possible to slow the progression of the disease, reduce symptoms, and improve quality of life.
Getting regular physical exercise, engaging in mentally stimulating activities, and participating in engaging activities all help improve brain health.
6. Share your challenges and get help
Caregiving, especially dementia care, can be a lonely and exhausting job. Instead of doing everything alone, talk about your challenges and reach out to people who can help.
It can be difficult to seek out or accept help, but caregivers who have gotten help often wish they’d done it sooner – it’s worth a try. Knowing that you’re not the only one going through this or getting a few hours of rest can make a big difference.
That could mean asking family or friends to step up, hiring in-home care, moving to a care community, using respite care, or joining a caregiver support group.
If you’re not sure where to start, call the Alzheimer’s Association or contact your local Area Agency on Aging to connect with local caregiving resources.
7. Choose one small thing to do for yourself
When caring for someone, it’s instinctive to focus 100% on them…until you get burned out. But that’s not good for you or your older adult.
It’s not realistic to take long vacations or hours for yourself each day, but you’d be surprised at how effective short breaks can be. Doing something for yourself, whether it’s 30 seconds, 5 minutes, or an hour, will help you recharge and reduce the risk of burnout.
Get 10 practical ideas for short breaks here.
8. Choose your priorities and let the rest go
Because you care so much about your older adult, you want to do as much as you can, as perfectly as you can. But holding yourself to those unrealistic expectations causes frustration, resentment, and exhaustion.
Instead, save your mental and physical health by picking your battles. Choose the top priorities and let the less important things go. Think about how important that thing will be in a week, month, or year.
9. Have the tough conversations about medical decisions and choices
Taking care of important legal documents, such as a will, living will, or power of attorney, is something many people want to put off.
But talking about end of life choices and getting the paperwork done before a health emergency saves you from making hard choices or running into legal problems in the middle of a crisis.
Plus, many older adults have greater peace of mind when they know their wishes will be honored.
10. Remember that they truly can't control their behavior
Dementia can’t be seen from the outside, so many people assume that the person can actually control their difficult or irritating behavior. It’s natural to think their actions are personally directed toward you.
That’s not true. Dementia physically damages the brain, which can affect personality, behavior, decision-making, and judgment.
Knowing that it’s the disease talking can help you take things less personally, reduce the sting of hurtful accusations, or help you stay calm when they’ve asked you the same question for the 37th time.
11. 20 minutes later can feel like a whole new day
If you’re helping your older adult with an activity of daily living and they get agitated or combative, it can help to stop and take a short break.
Rather than fighting through and making the situation worse, stepping away to give them (and you) time to calm down can make a big difference. Make sure they’re safe on their own and go to another room for 20 minutes. When you come back and approach calmly, they’ll often be more cooperative.
For example, if mom starts yelling and pushing you when you announce that it’s time for a shower, give her some space and come back to it in a little while, perhaps using a different approach.
This won't always work, but it often does, so it's worth a try.
12. Quality of life is still possible
It isn’t easy to cope with dementia, both for you and your older adult. But finding ways to enjoy life and having a good quality of life is still possible.
You don’t have to pretend that the challenges and pain don’t exist. Try to focus on the positives, no matter how small, and adapt activities for the abilities they still have.
Final Thoughts About Learning Dementia Care from the Experts
This journey, charted by the collective wisdom of those who have walked the path before you, is one of profound challenge and unexpected grace. By embracing these 12 hard-earned insights, you're not just learning to provide better care; you are building a foundation of compassion and resilience for yourself.
These tips are more than advice; they are a lifeline from a community that understands, offering you permission to navigate this road with more patience for your loved one and far more kindness for yourself.
Let wisdom be your guide, transforming daily challenges into moments of deeper connection and ensuring you do not walk this path alone.
Next Steps: Get Esther’s list of 12 things dementia caregivers wished they’d known sooner at Verywell
Recommended for you:
- 3 Ways to Respond When Someone with Alzheimer’s Says I Want to Go Home
- Why Experts Recommend Lying to Someone with Dementia
- Dementia Caregiver with 7+ Years of Experience Shares Words of Wisdom
About the Author
Connie is the founder of DailyCaring.com and was a hands-on caregiver for her grandmother for 20 years. (Grandma made it to 101 years old!) She knows how challenging, overwhelming, and all-consuming caring for an older adult can be. She also understands the importance of support, especially in the form of practical solutions, valuable resources, and self-care tips.
A dementia patient takes time to collect words and communicate. So you need to be patient when they are speaking to understand them in the right way. Thanks for sharing article with us.
That’s a great point! We’re so glad this article is helpful.