Understanding the progression of dementia can help families and caregivers prepare for the challenges ahead. In this blog post, we’ll explore the three main stages of dementia and what to expect as the disease evolves.
Ease Uncertainty by Understanding the Three Stages of Dementia
A big challenge and source of stress in Alzheimer’s disease and dementia is uncertainty.
Nobody can predict what will happen with your older adult’s cognitive ability, behavior, or preferences or when these changes will happen.
However, understanding the three stages of dementia – early, middle, and late – gives a sense of what to expect and can be used as guidelines to plan for the future.
We explain the three dementia stages, the common symptoms in each stage, and why your older adult’s symptoms don’t always fit into these stages.
What Are the Three Stages of Dementia?
Typically, these stages apply to all types of dementia, including Alzheimer’s disease.
But it’s important to remember that someone with dementia may not always fit in a specific stage or go through every stage because the progression of dementia is unique and different for each person.
Early – Mild Dementia
In the early stage, a person with dementia might still be able to live independently. They might still be able to drive, work, and socialize.
However, they will probably have memory lapses, like forgetting familiar words or the location of everyday objects.
Other people may start to notice that the person is having difficulty, experiencing memory loss, or that something “seems off.”
In a thorough medical exam, doctors might be able to detect problems in memory or concentration.
Symptoms may include:
- Struggling to find the right word or name
- Finding it difficult to do everyday tasks in social or work settings
- Forgetting something that they just read
- Frequently losing or misplacing things
- Increasing trouble with planning or organizing
- Making decisions with uncharacteristically poor judgment
Middle – Moderate Dementia
The middle stage of dementia is usually the longest and can last for many years.
As dementia progresses, the person will need an increasing level of care.
In this stage, you might notice that they get words mixed up, are often frustrated or angry, or act in unexpected ways, like refusing to bathe.
Damage in the brain can make it difficult to express themselves and do everyday things.
Symptoms may include:
- Forgetting things that happened recently or significant events in their life
- Being moody or withdrawn, especially in social situations or when something requires too much thought
- Not remembering significant things like their address, telephone number, high school, etc.
- Getting confused about where they are or what day it is
- Needing help choosing appropriate clothes for the season or occasion
- For some, trouble with incontinence
- Changing sleep patterns, like sleeping during the day and being restless at night
- There is an increased risk of wandering and getting lost
- Personality and behavior changes, including paranoia, delusions, and compulsive, repetitive behavior like hand-wringing
Late- Late Stage Dementia
In the final stage of dementia, people progressively lose the ability to engage in the world, hold conversations, and control their muscles.
They may still be able to talk, but communicating and expressing thoughts becomes difficult – even for something basic like pain.
Their memory and cognitive skills continue to worsen, and you might see significant personality changes or the fading of personality altogether.
At this stage, people with dementia typically:
- Need 24/7 help with daily activities and personal care
- Have increasing difficulty communicating
- Lose awareness of recent experiences and their surroundings
- Gradually and progressively lose physical abilities, including the ability to walk, sit, and swallow
- Become more likely to develop infections, especially pneumonia
A person with dementia doesn’t always fit into one stage
Dementia uniquely affects each person and changes different parts of the brain to varying points in the disease progression.
Plus, different types of dementia tend to have other symptoms.
For example, someone with frontotemporal dementia may first show extreme behavior and personality changes. However, someone with Alzheimer’s disease would first experience short-term memory loss and struggle with everyday tasks.
Researchers and doctors still don’t know enough about how these diseases work to predict precisely what will happen.
Another common occurrence is for someone in the middle stages of dementia to have a clear moment, hour, or day suddenly and seem like they’re back to their pre-dementia abilities. They could be sharp for a little while and later go back to having apparent cognitive impairment.
When this happens, some families may feel like their older adult is faking their symptoms or not trying hard enough.
It’s important to know that this isn’t true. It’s genuinely dementia that’s causing their declining abilities as well as those strange moments of clarity – they’re genuinely not doing it on purpose.
Knowing the stages of dementia helps you plan
Even if the stages aren’t exact and symptoms can still be unpredictable, being able to plan is essential.
The truth is that Alzheimer’s and dementia care is expensive and time-consuming. Being financially prepared for increasing care needs is a necessity.
On an emotional level, knowing what symptoms to expect helps you find ways to cope with challenging behaviors.
It also allows you to mentally prepare yourself for the inevitable changes in your older adult.
Recommended for you:
- “I Want to Go Home” in Alzheimer’s: Try 3 Kind Responses
- Activities for Dementia: 10 Fun, No-Fail Ideas
- 12 Best Alzheimer’s and Dementia Books for Caregivers
About the Author
Connie Chow
Connie was a hands-on caregiver for her grandmother for 20 years. (Grandma made it to 101 years old!) She knows how challenging, overwhelming, and all-consuming caring for an older adult can be. She also knows how important support is — especially in the form of practical solutions, valuable resources, and self-care tips.
Thanks for Your efforts to help for elderly with You. Thanks for good and useful materials. I hope You will start after time. I Wish all the best for You and believe to have contacts with You.
Your sincerely , Angele Bajoriene, Director and createur of NGO International Social Academy , Lithuania, Vilnius
After a recent fall, and hospital stay and rehabilitation stay, we were told my mom could not live by herself any longer. We knew this was coming sooner or later and it sort of forced our hand to find an assisted living facility for her. We went through a placement agency that helped us find the right place for my mom. Yes, it is expensive, but it is a relief to my sister and I that she has round the clock care. Fortunately, my mom had some money at her disposal and with the sale of her mobile home, we might be able to go a year to pay for her care before we have to apply for medicaid. She is in the 3rd stage of Alzheimer’s. We visit almost every day and can see her getting progressively worse. She is in a residential facility.
It’s wonderful that you found a great place where your mom is well cared for 💜
While I appreciate up to date information, it is too late for my husband, who is in Stage 7, vascular dementia. He was diagnosed in 2019 based on one MRI with Alzheimer’s Type 4, Vascular! At that time, our PCP did not react, I was thrown for a loop as he went steadily down hill during the COVID issues in 2020, and I did not know what I know now. We both were trying hard to deal with the day to day alone. We live in Tucson and health care here, as in many places in America leaves much to be desired. So, now that he has been in a facility here in Memory Care – after 3 strokes between Jan. 30 and 31, – I could not care for him. No one ever really addressed the issues of the strokes as he was 86, no treatment, and only allowed 18 days in rehab before being admitted to the Memory Care Unit. I now know if, I would have taken him myself to the only hospital in Tucson with an actual Stroke Unit: would have gotten help from social work to get the equipment I needed; could have gotten home health help; He could have come home and the guilt I have now, knowing these things, would not be part of my personal issues. Here we are in 2024, with little actual knowledge among the majority of people, let alone Caregivers and patients, little actual knowledge of real diagnoses, real actual knowledge of how the brain works normally let alone with Dementia. I have and continue to question whether he really has Alzheimer’s or just the vascular issues which caused the dementia and strokes. He continues to have TIA’s. I am angry but can’t do a thing about any of this. Just visit, love him and await his death.
We’re so sorry to hear about your husband’s strokes, advancing dementia, and lack of help from medical professionals. It’s so difficult to know the ideal choices at the time something is happening and you made the best choices you could with the information you had at the time. It’s so true that there isn’t enough knowledge of the brain and the serious conditions that affect the brain 💔
Phyllis I feel compelled to comment and tell you I understand and empathize with you. I’m a super proactive person but if I was not we would be blindly walking this journey with my MIL. There truly isn’t enough education for caregivers and when they see neurological and PCP occasionally they don’t know what is REALLY happening day to day. So frustrating and disheartening. Please know YOU ARE doing your best, YOU ARE human and it’s okay to have ALL your feelings, and YOU ARE ENOUGH. Be kind to yourself, love yourself. I’m lifting you and your husband in prayer.
I’m not sure if I’ve stumbled across a useful item, or this has been addressed and I hadn’t read about it. My husband of 42 years has Parkinson’s dementia, and the past year has become an increasingly difficult challenge of keeping him in bed at night. When he gets up and wanders about the house he is usually chasing the ‘oompa-loompas’ (what we call his hallucinations). One night he wanted to get into bed with me in the spare room, but since the bed is only a twin, I suggested he bed down around the corner on the futon. He slept the rest of the night. So I was bouncing this off a friend; how I thought the futon acted like a thunder jacket on a dog, and wondered how he would do with a weighted blanket. She had one she wasn’t using, so his bed now has the weighted blanket, and he’s getting up fewer times at night during the week. I would say what use to be every other night, is now every third night, which is good for me because I need the sleep for my own health issues. I’m not sure how he will do once the weather warms up again, but I’m thrilled this is helping him sleep.
Thanks for sharing your tips and experience! Weighted blankets are wonderful for many people. We’ve got an article about it here – Weighted Blankets for Dementia Improve Sleep and Reduce Anxiety https://dailycaring.com/weighted-blankets-in-dementia-care-reduce-anxiety-and-improve-sleep/
Some are marketed as “cooling” weighted blankets like this one at https://amzn.to/3zEIDtz , so that might be a solution for the warmer months.
My husband suffers from delusions. He believes other people, he does not know them, come and go in our home at my behest just to frustrate him. He accuses me of kicking our daughter out of the house due to jealousy. Our daughter is married, with children and never has been living with us since she left college. He thinks she came and lived with us to take care of him when I am away. We have been married nearly 56 years and none of this is true.
We’re sorry to hear about this challenging situation.
We’ve got some suggestions on how to handle hallucinations/delusions here – 10 Ways to Respond to Dementia Hallucinations in Seniors https://dailycaring.com/10-ways-to-respond-to-dementia-hallucinations-in-seniors/
These articles may also be helpful:
– 8 Ways to Deal with False Dementia Accusations https://dailycaring.com/8-ways-to-deal-with-false-dementia-accusations/
– Responding to 4 Common Dementia Accusations: Stealing, Poisoning, Being Held Prisoner https://dailycaring.com/responding-to-4-common-dementia-accusations-stealing-poisoning-being-held-prisoner/
I’m 41 and think im in the middle to late stages of dementia. I feel myself slipping away if that makes sense. my son is the only person I am around due to being a single mom and he can see it. please tell me what I can do. I suffer from numerous mental health diagnosis including major depression, bi polar, borderline personality disorder and severe anxiety. am I beyond help? my boys are my everything, I do not want to be a. ithering to them they are only 15 and 17. I need help.
The first thing to do is to visit your physician for a full exam. Let them know your symptoms and concerns and ask them to help you figure out what could be causing them. There are many causes for dementia-like symptoms that can be treated.
My aunt is experiencing early signs of dementia and it worries me a lot. It doesn’t run in the family so we are all confused as to how this is happening, but I guess it can happen to anyone. Thank you for sharing this so we know what to expect. Do you think there is any cure? I read that hearing aids can help with dementia here, https://www.ez.insure/landing/2019/11/hearing-aids-and-dementia/ . Thoughts on it?
The best thing to do is to have your aunt get a thorough checkup from her primary physician. It’s possible that she has dementia, but it’s also possible that she could have a treatable health condition that causes dementia-like symptoms.
We share more info about treatable health condition that cause dementia-like symptoms here:
– 8 Treatable Diseases That Mimic Dementia https://dailycaring.com/8-treatable-diseases-that-mimic-dementia/
– 7 Treatable Health Conditions with Dementia-Like Symptoms https://dailycaring.com/7-treatable-health-conditions-with-symptoms-similar-to-dementia/
We’ve also got an article about how dementia is diagnosed here – How Is Dementia Diagnosed? A Geriatric Doctor Explains https://dailycaring.com/how-is-dementia-diagnosed-a-geriatrician-explains/
And you can find out more about how hearing loss can increase the risk of dementia here – Reduce Dementia Risk by Treating Hearing Loss https://dailycaring.com/treating-hearing-loss-reduces-dementia-risk/
My wife of 52 years has been diagnosed with late stage dementia. One of the things she does all day is to walk through our home constantly, so in order to get her to stop walking, I take her on rides in our car. It seems to calm her down, but just as soon as we return home, she starts walking again. I love her so much, but sometimes I lose my patience with her and even raise my voice. Another thing she does is to rearrange the pillows on our couch constantly. I miss the woman I married, simply because she can’t carry on conversations any more.
It’s wonderful that you’ve found that going on car rides is a helpful and pleasant distraction. Perhaps you could find additional activities that could help her stay busy and give a sense of accomplishment. That could help reduce her need to walk and rearrange, which sounds similar to rummaging behavior.
These articles may have helpful suggestions:
– 10 Fun, No-Fail Activities for People with Dementia https://dailycaring.com/activities-for-people-with-dementia-10-fun-no-fail-ideas/
– 9 Ways to Manage Dementia Rummaging Behavior https://dailycaring.com/9-ways-to-manage-dementia-rummaging-behavior/
– 4 Reasons Dementia Activities Are Important and 5 Ways to Adapt Everyday Tasks https://dailycaring.com/4-reasons-dementia-activities-are-important-and-5-ways-to-adapt-everyday-tasks/
Caring for someone with dementia is a challenging role and it’s understandable that you might lose your patience, especially with repetitive behaviors. This article might be helpful in managing that – 4 Ways to Respond When Someone with Alzheimer’s Is Repeating the Same Thing Over and Over
Another thing that might help with dealing with the changes is to join an online caregiver support group. Here are our top recommendations – 11 Private Support Groups for Caregivers on Facebook https://dailycaring.com/support-groups-for-caregivers-on-facebook/
Bob,
I used to give my Mom the towels to fold when I did the laundry and also the socks. It took her time to match the socks but it gave her a sense of helping out. Sometimes I would rearrange the socks and give her the sock drawer to arrange them again! She like that activity, Instead of feeling frustrated, find ways to lighten the mood with a smile and kiss – she’s still there inside and needs your love. You need a break too – Seniors helping Seniors is a great organization.
I think my mom has this. My dad never knows what she is going to be like when she wakes up in the morning. She is usually good by the afternoon. She gets mad at the littlest things and then won;t talk to him. She hides who she is really well in front of others. She also threatens to leave my dad so he can’t have the conversation of having her checked out or she would leave. She would not be able to live on her own. So he doesn’t know what to do. She is healthy otherwise so he cannot take her in. He will not try to deceive her to get her into the doctor and get her checked out. She has been like this for at least 8 years. No memory loss at this point that I know of. Although she did do something strange today. She said a middle aged woman in an ad is always the mother. I asked her what show and she said them all. This person is not well known and I have not seen her in any show. That’s not a good sign. I just do not know how to help my dad.
Without having a doctor examine your mom, it’s impossible to know what could be causing her symptoms.
For example, there are many treatable health conditions that could cause dementia-like symptoms. Or, it is possible that she has Alzheimer’s or another form of dementia.
Typically, an annual wellness checkup at the doctor is recommended and is covered by insurance. Maybe you and your dad could present this as not missing out on a free benefit that comes with paying for health insurance?
And then, communicate your concerns with the doctor ahead of time so you won’t need to discuss it in front of your mom at the appointment. Then, the doctor can use the exam to assess the situation.
To better understand and manage these types of behaviors, we have a number of articles in our Alzheimer’s & Dementia Challenging Behaviors category – https://dailycaring.com/tag/challenging-dementia-behaviors/